neurology surgeon appointment update

Totally not what we expected.

The doctor looked at his MRI and said everything looked fine and he did not see any signs of a tethered cord at all. I asked what about the report?? they read the report to me over the phone and said “lack of movement, indicative of tethered cord”. He had not seen that report and had them fax it over so he could see what I was talking about. When he read it he said it meant nothing and there is no basis for saying that and that particular hospital seems to include that possibility in so many reports when it is unfounded.

He did not see a correlation in the foot weakness because it was only twice and came and went so quickly.

He is referring us to a urologist next for the bowel and bladder incontinence.

I am relieved he will not be needing spinal surgery! wooohooo! but also wish we knew what is going on with my little guy.

5 Responses to “neurology surgeon appointment update”

  1. Jen Says:

    Wow, what a relief! I’m anxious to hear what you learn from a second opinion. Good luck!

  2. Anonymous Says:

    God! What a run-around! But, thank goodness for second opinions. I hope everything turns out okay.

  3. Jessica Says:


  4. Casey Says:

    That is nice to hear. Hopefully they find an answer (& solution) soon.

  5. Kathleen Says:

    Wow, oh good! I am so happy that he doesn’t have to go through all that. I hope you get things figured out soon!

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